population based registries

How is Data Collected in PBCRs?

Data collection in PBCRs involves multiple steps and sources:
1. Case Identification: Cancer cases are identified through various sources such as hospitals, pathology laboratories, outpatient clinics, death certificates, and cancer screening programs.
2. Data Abstraction: Trained registrars extract detailed information on each case, including patient demographics, tumor characteristics, treatment received, and follow-up information.
3. Data Verification: Rigorous data verification processes are in place to ensure accuracy and completeness. This may involve cross-checking with medical records and other databases.
4. Data Entry and Storage: The verified data is entered into a secure database and maintained in accordance with data protection regulations.

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